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Local Topic Don't Miss Out on the Sugar Land Rotary 5K!

Local Topic Don't Miss Out on the Sugar Land Rotary 5K!

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by: TownHubAdmin Site Admin  OP  New Member
~ 2 years, 3 mos ago   Dec 28, '23 12:30pm  
Don't Miss Out on the Sugar Land Rotary 5K!
 
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There are only 4 more days in 2023 and there are only 4 more days before the registration cost of the Sugar Land Rotary Running with a Heart - Sugar Land Rotary 5K increases.
 
Registration is easy, just click on this link: www.sugarlandrotary5 k.com/?fbclid=IwAR0k CErxPRsrRCuTBFSXeY2A bl9Na5JTFHdj0Cf and you will be able register for their annual walk or run.
 
By registering for their annual race, you will be supporting the non-profit CureSHANK. Phelan-McDermid syndrome (PMS) is a rare and highly disabling genetic disorder primarily associated with changes to the SHANK3 gene. This happens either because of a deletion toward the end of the 22nd chromosome (where SHANK3 is located) or through harmful variants (mutations) of the SHANK3 gene.
 
PMS causes myriad devastating symptoms, including autism, intellectual disability, developmental regression, sleep disruption, seizures, psychiatric disturbance, hypotonia and more. Virtually no person living with PMS even comes close to being able to live independently, and most operate developmentally at the level of a toddler.
 
The disorder can vary significantly in its manifestation from person to person. Most are nonverbal, but a few can talk. Some cannot even sit unassisted, while others can run. Some experience debilitating epilepsy, or require a feeding tube, or develop severe psychiatric illness such as catatonia and psychosis. All varieties of PMS are very challenging for patients and their caregivers, with the common thread that symptoms generally increase and worsen with age.
 
CureSHANK was founded in 2019 by three parents of children living with PMS. Its mission is to accelerate the development of cures and treatments for PMS by funding projects that help bridge the translational research gap between basic SHANK3 science and successful clinical trials for PMS. Read more about CureSHANK's work at www.cureshank.org/
 
Sugar Land Rotary 5K - Running with a Heart is on Saturday, February 3, 2024 at 7:30am at Sugar Land Town Square 15958 City Walk Sugar Land, TX 77479
 
They can't wait to see you on February 3, 2024.
 
Learn more here www.sugarlandrotary5 k.com/about
 
Consider sponsoring the annual Sugar Land Rotary 5K - Running with a Heart 2024
 
Thank you to the following 2023 sponsors:
 
*Signature Care- Stafford, NBG Constructors, House of Blooms
 
*AJ Bez- Realtor, Bailes Bates & Associates CPA, Brazos Bend Services, Hartford Cooling Heating & Plumbing, Marriott Sugar Land, Methodist Sugar Land, Wilcox Media and Marketing, Tracy Walker
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